Propionic Acidemia Research Network :: PARnet

Uniting Academics and Medicine to Find a Cure

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PARnet Publications:
  Reaching out to Find a Cure!

PARnet produces educational materials to help PA patients, caregivers, physicians and researchers better understand each other's needs and to advocate for more individuals to pursue studies in metabolic disorders such as PA.  Please take a look at our publications and distribute them freely to anyone you feel may benefit from this information.  If you intend to do a large mailing, please inform PARnet of your efforts so we may thank you!

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NEW RESEARCH PUBLICATION!

CURRENT RESEARCH ON ORGANIC ACIDEMIAS  2007

Up-to-date research on PA, MMA and IVA

The current state of treating PA by Dr. Mendel Tuchman

Forward by Dr. James Leonard

PARnet endorses donations to the Propionic Acidemia Foundation


Interested in Hosting a Fundraiser to cure PA?
 
Please contact us at
outreach@paresearch.org  for ideas and information that will help you launch a successful event!  There are numerous ways to raise funds that do not take a burdensome amount of time, and will help further PA research.


Please join us in our mission to find motivated researchers and to support their research efforts!


© 2006 Propionic Acidemia Research Network.  All rights reserved.


 

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